Resources 2017-08-18T19:02:34+00:00

Resources

These books and websites provide tools and actionable advice about caregiving:

Books

Websites

  • Algorithms Can Treat Physician Fallibility
    Yes, physicians are fallible. They are human, just like you and me. And the intense pressure of their profession often flaws and distracts their thinking despite their best efforts to be clinical.In fact, half of all physicians are below average (and half are above average of course). Dr. Jan Poloniecki observed that “… even if all surgeons are equally good, half of them will have below average results; one will have the worst results and those results will be a long way below average,” according to the British Medical Journal.
  • Outdated Healthcare Ignores Evidence
    Algorithms Can Treat Physician Fallibility. Part 2.
    I’ve learned by assembling the following information that the politically touted “best health care in the world” at primary and acute care levels is outdated and at least 10 to 20 years behind the times. And that’s a conservative estimate, based on my 2015 experience with the Desert Orthopedic Center (DOC) at the Eisenhower Medical Center in Rancho Mirage, California. There, I underwent cervical spine fusion surgery where a 3-ring binder was eventually filled with the paper trail of my diagnosis and treatment. It bulged with paper and followed me into what was touted as state-of-the-art surgery…
  • Source of Authoritative, Useful Caregiving Advice
    United Hospital Fund is a New York-based non-profit health services research organization at www.uhfmyc.org. It publishes newsletters, reports and presentations offering concise and practical advice to caregivers about dealing with many everyday issues confronting caregivers and patients anywhere in the U.S. healthcare system. Much of the information is how-to and do-it-yourself, and is a great resource for anyone actively involved in the care and treatment of a patient. For example there is “Family Caregivers Providing Complex Chronic Care to Their Spouses” and “Hospital Discharge Planning.”For the most part you can ignore the New York origin of this information because it pertinent throughout the nation.
  • Orientation to Caregiving for Brain Tumor Patients
    This is the closest publication I have found so far that can be considered a User’s Manual for any segment of healthcare. It is a practical guide that can benefit any patient or caregiver embarking on the journey of brain tumor care and treatment. First published in 2007 by the University of California, San Francisco, the handbook is now in its second edition and should be available at the Bellingham, Washington, PeaceHealth Cancer Center. In my own experience it took me 18 months to learn what is in this handbook, which I could have learned in just two or three hours of reading.It is too bad there are not similar handbooks for many other diseases to ease the burden of suddenly stricken patients and caregivers.
  • Whatcom Alliance for Health Advancement (WAHA)

Other Articles by and about Robert A. Duke: