Gordon “Gord” Downie, lead singer for the Canadian pop/rock band, The Tragically Hip, died October 17, 2017 of glioblastoma multiforme brain cancer at age 53. Diagnosed in May 2016, Downie was mourned throughout Canada as the loss of a national music treasure. Downie’s death spurred wide publicity about the nature of glioblastoma brain cancer and […]
Lou Nims, a symbol of hope, of beating the odds, for glioblastoma multiforme (GBm) brain cancer patients for more than 13 years, died July 5, 2017 at age 57. I didn’t know Lou, though I met him briefly at the first Bellingham Brain Cancer Walk in 2014. For a disease that most often claims its […]
“I will be a miracle.”
In Kenya, Africa, in July 2009, Shearlean Duke had what later proved to be seizures caused by a glioblastoma brain tumor. This was her second year in Kenya as Western Washington University’s faculty escorting Western students to Africa to work with Kenyan high school girls orphaned by AIDS.
Seizures began when she […]
No One’s Prepared for Terminal Caregiving
I was my wife Shearlean Duke’s sole caregiver for the entire 18 months of her battle with glioblastoma brain cancer, and as difficult as that was it has been the highest achievement of my life. I wouldn’t trade the experience for anything; however it’s not something I would recommend to […]
I’d stumbled through 18 months of caregiving without resolving my questions about my rights, duties, authority and entitlements as caregiver to a terminally ill patient. I relied mainly on a sense of outrage, indignation, commitment and protectiveness to sustain me.
Throughout the process itself, I had no time or energy to invoke legislated, approved or negotiated […]