“I will be a miracle.”
In Kenya, Africa, in July 2009, Shearlean Duke had what later proved to be seizures caused by a glioblastoma brain tumor. This was her second year in Kenya as Western Washington University’s faculty escorting Western students to Africa to work with Kenyan high school girls orphaned by AIDS.
Seizures began when she […]
No One’s Prepared for Terminal Caregiving
I was my wife Shearlean Duke’s sole caregiver for the entire 18 months of her battle with glioblastoma brain cancer, and as difficult as that was it has been the highest achievement of my life. I wouldn’t trade the experience for anything; however it’s not something I would recommend to […]
I’d stumbled through 18 months of caregiving without resolving my questions about my rights, duties, authority and entitlements as caregiver to a terminally ill patient. I relied mainly on a sense of outrage, indignation, commitment and protectiveness to sustain me.
Throughout the process itself, I had no time or energy to invoke legislated, approved or negotiated […]